- Wendy Oldenmenger (Rotterdam, Netherlands)
Anxiety in the terminal stages of cancer (ID 640)
- Saskia C. Teunissen (Utrecht, Netherlands)
Introducing palliative care in Estonia: How the RECaN project is facilitating the process? (ID 643)
- Kristina Karp (Tallinn, Estonia)
CN20 - Opinions of palliative care patients and nurses regarding dignified care (ID 5966)
- Yasemin Eskigulek (Ankara, Turkey)
Abstract
Background
Dignity is an important issue for delivering high quality palliative care. This descriptive, methodological study was conducted to evaluate Turkish validity and reliability of The Patient Dignity Inventory (PDI) among palliative care patients and to explore the views of palliative care patients and nurses about dignified care.
Methods
This study was approved by Baskent University Institutional Review Board (Project No: KA17/280). Patient demographic form, Palliative Performance Scale and, Hospital Anxiety and Depression Scale (HADS) were used for data collection.Ten palliative care patients and 10 nurses were interviewed. The semi-structured, face to face interviews were recorded digitally, transcribed verbatim and analyzed. Turkish validity and reliability study of the PDI was conducted with 127 palliative care patients with advanced cancer. Face validity, factor structure, concurrent validity, internal consistency and test-retest reliability analysis were performed.
Results
Cronbach’s coefficient alpha for the PDI was 0.94 and test-retest reliability was r = 0.75. Concurrent validity tests demonstrated positive significant correlations between factors of PDI and HADS. Factor analysis demonstrated 5 factors accounting for 68.7% of the overall variance. The factors were labeled as symptom distress, existential distress, self-confidence, dependency and, support and care requirements. Three themes emerged through data obtained from palliative care patients: respectability, caring practices, and usefulness. Three themes emerged through data obtained from palliative care nurses: maintaining one’s respectability; barriers and recommendations; benefits of care.
Conclusions
Turkish version of the PDI is a valid and reliable instrument among palliative care patients. Education may be useful for raising awareness of healthcare professionals about dignified care.
Legal entity responsible for the study
The authors.
Funding
Has not received any funding.
Disclosure
All authors have declared no conflicts of interest.
CN21 - Development of core indicators of non-specialist palliative care in hospitals: An international modified Delphi study (ID 2454)
- Mary Nevin (Dublin, Ireland)
Abstract
Background
Healthcare providers working in acute care hospitals have significant exposure to cancer patients with palliative care needs, and for the majority of patients these reflect non-specialist rather than specialist palliative care needs. Embedding non-specialist palliative care in acute hospital-based care is challenging. The aim of this paper is to present a core set of indicators for the provision of non-specialist palliative care in hospitals which was determined using a Delphi consensus process.
Methods
Preliminary indicators derived from a concept analysis and systematic review were subjected to a three round modified Delphi study, whereby a multidisciplinary expert panel of key stakeholders appraised (rated) each preliminary indicator on its ‘importance’ to non-specialist palliative care provision in hospitals. Stakeholders were also offered an opportunity to add ‘new’ indicators as they considered relevant. Consensus was defined whereby 70%, or more, of the participants across stakeholder groups agreed that an indicator was ‘core’ to non-specialist palliative care provision in the hospital setting.
Results
A total of 92 experts (74% response rate) representing the views of patients, clinicians and researchers, from twelve countries participated in the final round. This study resulted in 32 core indicators of hospital based non-specialist palliative care, categorised into 5 structural indicators (relating to infrastructure and governance), 21 organisational indicators (relating to clinical care processes) and 6 staff indicators (relating to training and support for healthcare providers).
Conclusions
This study presents the first guidance for clinical practice, policy and research related to non-specialist palliative care provision in hospitals, based on evidence and International consensus from all key stakeholder groups. These indicators provide a means to assess, review, and communicate the core elements of non-specialist palliative care in hospitals, thereby setting a benchmark for changes in policy and practice.
Legal entity responsible for the study
The authors.
Funding
Health Research Board.
Disclosure
All authors have declared no conflicts of interest.
CN22 - Psychological distress among patients with advanced cancer: A concept analysis (ID 852)
- Nurul Huda (Pekanbaru, Indonesia)
Abstract
Background
Psychological distress is common problem happened in advanced cancer patient. Issued of distress are often faced by health care professional when they are dealing with advanced cancer since many of unmet psychological need was identified. Unfortunately description of psychological distress in advanced cancer is not clearly mention since we know that psychological distress concept in advanced cancer is totally different with the psychological distress in the patient of early stage of cancer. Failure to acknowledge it earlier may have a great impact to patient’s quality of life. Although many articles referred and describing about psychological distress, this term is still poorly defined in the literature and has not been clearly yet. There are no articles were found about concept analysis of psychological distress among advanced cancer patients. The Purpose of this concept analysis is to clearly define psychological distress in terms of advanced cancer patients. This concept analysis could bring clarity meaning by examining various ways it is used in nursing area. Clarifying what is meant by psychological distress will help oncology nurse able to communicate among their colleagues, patients and care giver.
Methods
A literature search was conducted using CINAHL, Clinical Key, and Psych Info data base for the past 30 years (1988-2018).
Results
Cancer related psychological distress as a concept has limited research substation. Psychological distress in terms of advanced cancer has five defining attributes: 1) Anxiety, 2) Depression, 3) Demoralization, 4) Death anxiety and 5) Perceived in ability to cope effectively. The Primary antecedent is treatment complexity. The consequences can be negatively or positively related to concept. The most positive consequences is much appreciation of life. In another side, a negative psychological distress outcome are hopelessness, low quality of life, and reduced performance status.
Conclusions
Concept analysis of psychological distress could clearly defined the meaning of psychological distress and being as a guidance for nurses to give their nursing care appropriately. Intervention should address the antecedents and consequences of the concept and considered individual as a person who has unique characteristic.
Legal entity responsible for the study
The author.
Funding
Has not received any funding.
Disclosure
The author has declared no conflicts of interest.