Anneli Larsson is executive director in PIO, the Swedish patient organisation. She was employed as ED in 2012 after having served on the PIO board for 14 years, as chairman from 2006 until 2012. Her involvement in PIO started in 1996 when her second child was diagnosed with a PID. Two years later, in 1998, she was elected board member of IPOPI and served at the IPOPI board for eight years. In 2006, Anneli was one of the speakers at the EU PID Consensus Conference in Germany. She has on several occasions represented IPOPI and PIO at the European parliament for lobby activities and to raise awareness about primary immunodeficiencies, for example at IPOPI’s first high level EU meeting at the European Parliament’s Scientific and Technological Assessment Options Committee (STOA) in 2004. Anneli is also a member of the advisory board of The Swedish Information Centre for Rare Diseases.