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RECORDED LECTURES
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THE ETHICAL AND CLINICAL CONSIDERATIONS IN RELATING FUTILITY TO PALLIATIVE PSYCHIATRY
PALLIATIVE PSYCHIATRY: AN ANSWER TO FUTILITY
FUTILITY IN ANOREXIA NERVOSA – A QUALITATIVE STUDY WITH EXPERT THERAPISTS
Abstract
Abstract Body
Background: There is a lack of evidence-based care options for patients with severe and therapy-resistant anorexia nervosa (AN). Assuming that expert therapists had developed (implicit) strategies for caring for these patients, we strove to verbalize and bundle this experiential knowledge.
Methods: As the research field is largely unexplored, we took a qualitative approach. We conducted 21 semi-structured interviews with physicians and psychologists from mental health care and palliative care, who had been involved in the care of at least one patient who subsequently died of their AN.
Results: Most experts agreed that in some cases, AN is not responsive to treatment, rendering further attempts at curing the disorder futile. Most reported to change their goals of care in such cases, striving for harm reduction, improved quality of life, or relief of suffering instead of normalization of eating behavior and weight.
Discussion: The concept of futility seems to have clinical relevance in AN. Futility means that further treatment aiming at normalization of eating behavior and weight will most likely not be successful. Accepting futility of curative treament attempts enables therapists to pursue alternative goals of care, such as improving quality of life. Explicitly developing futility criteria and palliative approaches for AN is a promising approach to dealing with one of the most challenging issues in mental health care.