Author Of 2 Presentations
TRANSLATION OF A BRAZILIAN EDUCATIONAL BOOKLET FOR HYDROCEPHALUS INTO THE SPANISH LANGUAGE OF SPAIN
Abstract
Background
Fear of the unknown and the unexpected is common among caregivers (i.e., the parents and relatives who provide care) of children with hydrocephalus, and the lack of adequate information should be minimized. Recently, we created and validated an education booklet in for hydrocephalus aimed to empower caregivers of children.
Objectives
Translate the Brazilian version of the booklet "Laura's diary: knowing hydrocephalus and its treatment" for the Spanish language of Spain.
Methods
Methodological study, conducted in Spain (Universidad Santiago de Compostela) and Brazil (Botucatu Medical School – UNESP). The procedure followed the steps of translation (two Brazilian translators with fluency in the Spanish language), synthesis (Spanish nurse with experience in education) and back translation (Brazilian translator and nurse with fluency in the Spanish language). Finally, convergences and discrepancies between the translated/original and the versions for the Spain context were compared.
Results
The two versions of the initial translation arrived at similar results, with few necessary adjustments in the consensus meeting between the researchers for achieving the synthesis of the translations. The two versions of the back-translation indicated that they were highly similar to the original content. The next step will be a submit to the committee of specialists for consideration.
Conclusion
Free Spanish was introduced in the form of a 21-page journal entitled, “Diario de Laura: Conociendo la hidrocefalia y su tratamiento”, to help recognize the role of nurses, minimize the negative impact of surgery, and empower families. In addition, the booklet is expected to be useful tool in future research.
CLINICAL AND EPIDEMIOLOGICAL PROFILE OF CHILDREN WITH HYDROCEPHALUS
Abstract
Background
Hydrocephalus is a multifactorial disease that occurs predominantly in childhood, causing functional and neuropsychological abnormalities, determining impact for children, family members and health professionals.
Objectives
To analyze the clinical and epidemiological profile of children with hydrocephalus in a children’s neurosurgery outpatient clinic of a university hospital.
Methods
Cross-sectional study using nonprobability sampling methods. Conducted in 2018 in the Children’s Neurosurgery Outpatient Clinic of a university hospital, Brazil. We included children with hydrocephalus between 01 month and 15 years old.
Results
We enrolled 32 children, 16 girls and 16 boys; with mean age of 4.4 ± 3.9 years. First shunt was done at 1.27 ± 3.06 years. The causes of hydrocephalus were: spina bifida (35.5%), neonatal brain hemorrhage (22.6%), neoplasms (12.9%), and others (28.8%). Considering all shunts and shunt reviews, there was an average of 1.58 ± 3.06 surgical proceedings for each patient. Twenty (62%) patients presented complications, including infection in 8 (25%), and shunt malfunction in 12 (37%). We found no association between the causes of hydrocephalus and the number of surgeries (p = 0.072), and between the causes of hydrocephalus and shunt dysfunction/infections (p = 0.394).
Conclusion
This study contributes to characterize the evolution and treatment of hydrocephalus in our community, producing basis to make comparisons with the literature and other services.