On behalf of the James Lind Alliance Priority Setting Partnership for Stroke Steering Group
We currently do not have research priorities, as identified by people affected by stroke and healthcare workers. The Stroke Association (UK) led a Priority Setting Partnership (PSP) using the James Lind Alliance methodology. Here we announce the novel priorities for prevention, diagnosis, and acute care.
A Steering Group comprising of people affected by stroke and representatives from UK stroke healthcare professional bodies and charities developed the protocol. A first survey collected researchable questions from people affected by stroke and professionals. Unique unanswered questions were developed through de-duplicating, combining and checking against existing evidence. Questions were then categorised according to the stroke care pathway into prioritisation surveys. Workshops with professionals and people affected by stroke will develop the final research priorities.
Almost 4000 questions were collected (41% from professionals; 46% people affected). 39 questions were included in the prevention, diagnosis, pre-hospital and hospital care prioritisation survey, which had 861 responses, resulting in 14 questions selected for the final workshop. The prioritised Top 10 questions will be presented. The process had good representation from professionals and people affected, however we had fewer responses from some Black and Asian ethnic communities.
The Top 10 priorities in stroke prevention, diagnosis, pre-hospital and hospital care will reflect the needs and priorities of professionals and people affected by stroke who will benefit from future stroke research. Stroke research is underfunded so it's vital additional funds are directed towards these priorities.
We acknowledge members of the Steering Group and all participants.
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