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- Wendy H. Oldenmenger (Rotterdam, Netherlands)
Palliative care in the time of Coronavirus
- Bettina Korn (Dublin, Ireland)
Implementing indicators for non-specialist palliative care
- Mary Nevin (Dublin, Ireland)
Early/integrative palliative care in context of haematological malignancies
- Gaëlle Vanbutsele (Gent, Belgium)
CN25 - The haemato-oncology patient experience of the process of palliative care: A constructivist grounded theory study
- Karen Campbell (Edinburgh, United Kingdom)
Abstract
Background
Haemato-oncology (HO) patients comprise 8.5% of the overall adult cancers within the UK. Despite advances in treatment, eventually the majority will enter into a palliative care phase. Evidence suggests palliative care is late or non-existent for HO patients, resulting in suboptimal care with many dying in hospital. Various reasons have been cited as affecting integration of palliative care services. However, to-date there has been no studies from the patient’s perspective of the process of palliative care in last year of life.
Methods
Using the design of Constructivist grounded theory, 21 semi-structured patient interviews were conducted from two different NHS trusts between 2016-2017. Constant comparison technique was used to collect and analyse data.
Results
The substantive theory of ‘
Conclusions
This study reconceptualises the incurable pathway as a ‘
Legal entity responsible for the study
University of Stirling.
Funding
Has not received any funding.
Disclosure
The author has declared no conflicts of interest.
CN26 - Do patients with advanced lung cancer have more palliative care needs than patients with severe chronic obstructive pulmonary disease (COPD)?
- Georgia Ntavarinou (Athens, Greece)
Abstract
Background
Advanced Lung Cancer (LC) and severe Chronic Obstructive Pulmonary Disease (COPD), decisively affect patients' lives on multiples levels. This study aimed to compare the palliative care needs of patients with advanced LC and severe COPD and evaluate factors affecting them.
Methods
A cross-sectional study was performed in two public hospitals in Athens (September 2017 - March 2019). A convenient sample of 172 patients (85 LC / 87 COPD) who consented to participate, were interviewed (response rate 96%). A clinical-demographic questionnaire and the following 4 evaluating scales were used: a) PNPC-sv (0-64), problems and needs for palliative care, b) SF-12 (0-100%) health survey (physical and mental), c) PHQ-15 (0-30) severity of somatic symptoms d) PPS-v2 (0-100%) functional status. Data were analyzed by SPSS 22.0 program with the significance level set at 0.05 (p=0.05).
Results
Patients with COPD had significantly worse functional status (PPS score: 60% vs 80%) (p<0.001), more discomfort from physical symptoms (11.51% vs 8.51%) (p=0.002), more problems and greater need for care with PNPC compared to patients with LC (p<0.05). The health survey (physical and mental) was assessed as moderate (35.13% vs 37.42% and 44.18% vs 47.36%) without a statistically significant difference. Regression analysis in patients with LC revealed that women reported a significantly greater need for care than men (p=0.028). In COPD patients, nebulizer use and the number of re-admissions were associated with greater need for care (p<0.05). Those with more re-admissions reported worse mental health (p=0.007), and women had worse mental health than men (p=0.009).
Conclusions
Study findings support that hospitalized patients with advanced LC had less palliative care needs than those with severe COPD.
Legal entity responsible for the study
The authors.
Funding
Has not received any funding.
Disclosure
All authors have declared no conflicts of interest.
Q&A and live discussion
- Wendy H. Oldenmenger (Rotterdam, Netherlands)