Martine Pergent is currently the President of IPOPI and was elected in October 2018 after serving eight years as IPOPI Vice-President. She has a wide experience in patient advocacy and is particular-ly committed in raising awareness on PIDs as rare condi¬tions, improving access to early and accurate diagnosis and personalised treatment, encouraging and supporting the creation of new patient organisations, especially committed to low-and-middle-income countries. She has special interest in the benefit rare diseases can get out of the progress of medical and social sciences, technology including digitalisation. As a patient advocate, Martine Pergent actively works so that Patients’ voice is not only heard but listened to when it comes to deci¬sions that could or will impact their lives. Therefore, she sees patients representatives as stakeholders whose experience and knowledge can enrich others stakeholders’ perspectives, in a joined efforts to cooperating so to achieve the ultimate common goal: the best possible life for patients with rare diseases. Martine Pergent was a co-founder of IRIS, the French Patient Organisation for Primary Immunodeficiency (1998), and since then was named honorary member of this organisation for her contribution. She is still a board member, active¬ly supporting and advising the officers and the executive director. Martine Pergent works as a consultant in Communications and change management, advising companies and institutions.