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Abstract Body

Introduction: Swedish researchers developed the Children´s anxiety questionnaire (CAQ) to assess children's perceptions of pictures designed to measure anxiety during hospitalization. Aim: Describe the process of cross-cultural adaptation of the CAQ for use in Brazil. Method: Methodological study of cross-cultural adaptation, conducted in Brazil and in Sweden, carried out in steps: Translation; Synthesis; Back translation; Evaluated by a committee of judges (13 health professionals); Pre-test version (10 children 4-9 years old) to verify the comprehension of the pictures and context. We used the content validity index (CVI) to measure the proportion or percentage of judges who were in agreement as well of individual items using the item-level CVI (I-CVI). For children we used “I agree” and “I disagree”. Consensus was considered to be above 0.8 agreement. Results: Convergences and discrepancies between the translated/original and the versions for the English context were compared with few necessary adjustments in the consensus meeting between the researchers for achieving the synthesis of the translations. The I-CVI semantic was 1.0, and idiomatic, conceptual and cultural equivalences were 0.92 each. The CVI global CAQ was 0.94. For the children we did two rounds to reach consensus. Finally, the authors of the instrument approved the version for Brazil. Conclusions: The Portuguese version of the CAQ proved to be appropriate and culturally adapted for use in Brazil. The next step will be to validate the instrument for children with cancer and preoperative for surgery. The purpose is to illuminate and relieve the children´s anxiety.

Abstract Body

Optimal parenting of a child with a congenital heart defect (CHD) can be very stressful. The experiences of the diagnosis, the overwhelming period before and after the cardiac surgery, and the following years may impact parents quality of life.
Research, exploring parent’s experiences leading to these symptoms, is limited. A qualitative systematic review is the best method for exploring these parents’ experiences. Qualitative studies and mix methods studies were searched in five electronic databases in peer-reviewed journals, aimed at understanding parental experiences. A total of 187 articles were identified; seven studies were included in the review.
A thematic analysis approach was used to identify the most common themes in the studies describing parental experiences of their infant’s hospitalization for cardiac surgery in the first weeks after birth. Four themes emerged: balancing the parental role, experiencing anticipatory grief, decreasing parents stress using coping strategies, and professional support.
Conclusion: Having a child hospitalized undergoing heart surgery is a stressful and anxious experience, as a result of different stress-related to parenting role alteration during the hospital stay and feelings of anticipatory grief. Most of the parents tried to adapt effectively by finding positive meaning favouring the process of coping and adapting to the demands added to its daily life. Professional support can help to overcome those anxious and uncertainty experiences.

Abstract Body

Background and aims

A supportive attitude towards families is an important precondition to encourage families to participate in nursing care. This nationwide survey aimed to gain insight into the attitudes towards Family Centered Care in a cohort of Dutch (paediatric) nurses.

Methods

We invited members of the Dutch Nurses Association for an online survey in Jan-Feb 2019. We used the validated Family Importance in Nursing Care – Nurse’ Attitudes questionnaire, that consists of 22 items with answer options on a 5-point Likert scale. Descriptive statistics were used to summarize the responses. Multivariable regression analyses were performed to explore associated factors and differences between groups. In addition, we organized focus groups to identify barriers for putting family participation into practice.

Results

In total, 966 nurses from various settings fully completed the survey. Among them were 76 paediatric nurses. Paediatric nurses’ attitude scored significant higher than nurses working in adult care: median FINC-NA score 90 (IQR 85-100) and 81 (IQR 76-87), p<0.000. Working experience of paediatric nurses ≥5 years was associated with a more supportive attitude, p=0.01. Highest scores were found in the subscale ‘family as a resource in nursing care’. Lowest scores were found in the subscale ‘building resilient families’. Focus group discussions identified barriers for putting family participation into practice, e.g. feelings of incompetence.

Conclusion

Family participation is positive valued by paediatric nurses in the Netherlands. We use the results in the development of a tailored education program to enable (paediatric) nurses to involve families in daily care.