Background and Aims

As the leading charity for people with diabetes in the UK, Diabetes UK became increasingly aware of the growing number of people with type 1 diabetes using DIY closed loop systems. Healthcare professionals have expressed concern about their professional role in this clinical setting..

Methods

Diabetes UK has developed this position through knowledge and insight gathered from our Care Team and through:

*Discussions with the diabetes community using this technology

*Discussions with clinicians who have patients using this technology

*Discussions with the Diabetes UK Council of HCPs

*Insights for the Association of British Clinical Diabetologists (ABCD) and Diabetes Technology Network (DTN)

Results

This positon includes reccomendations to the NMC and GMC to provide professinoal support. It also calls for greater suppoort and understanding of this technology and appropriate disclosure by users with thier HCPs. Users must be compentent in decission making and using pumps and CGM. Users must be aware that online support is not regulated and accessed at their own risk.

Conclusions

We look forward to a regulated and CE marked closed loop system being available for all who would benefit. However currently with a lack of regulation and no published high quality research trials to support their use or provide assurance this is a difficult intervention for HCPs to promote. Any individuals using DIY closed loop systems do so at their own risk but should not be restricted in access to well educated HCPs..