Welcome to SIOP 2022 Interactive Programme

The Congress will officially run on CET time zone (Central European Time, Barcelona)

Displaying One Session

1360 - CCI: SURVIVORS: NEEDS AND CHALLENGES

Session Type
CCI
Date
09/30/2022
Session Time
08:30 AM - 10:10 AM
Room
Rooms 122+123
Chair(s)
  • Patricia Mccolgan (Ireland)
  • Imad C. El Hajje (Lebanon)

INTRODUCTION

Session Type
CCI
Date
09/30/2022
Session Time
08:30 AM - 10:10 AM
Room
Rooms 122+123
Lecture Time
08:30 AM - 08:35 AM

HEROS BEYOND CHEMO - CHAMPIONS' CIRCLE

Session Type
CCI
Date
09/30/2022
Session Time
08:30 AM - 10:10 AM
Room
Rooms 122+123
Presenter
  • Bilal A. Koush (Lebanon)
Lecture Time
08:35 AM - 08:50 AM

Abstract

Background and Aims

As the number of our childhood cancer survivors is fortunately increasing,while the progress of diagnosis and treatment is progressing rapidly, The CCCL’s Champions' Circle saw the light during a special event held on April, 2018 grouping inspirational cancer-fighters from all over Lebanon and the region.The aims are to build a strong relationship amongst survivors, enhance and help those survivors’ lives through continuous fellowship care, socialization, education and activism support, grow the club to reach all childhood cancer survivors in the region and to safeguard their wellbeing.We are currently over 250 cancer survivors.

Methods

The Champions’ Circle program is to equip our heroes with educational and learning skills sessions, moral support to cope with post-treatment effects,to engage them with outreach community, and provide them with group support sessions and fun activities.Most recently, to ensure a healthy future lifestyle with less anxiety and fear, we provided our survivors and their parents with the COVID-19 vaccine to protect them from the global pandemic spread.Also, in line with WHO strategy, we offered survivors HPV vaccine targeting the age between 14 to 24 years old.CCCL organized two awareness campaigns targeting eligible caregivers and survivors based on multiple published research and physician inputs.Sessions included oncologist interventions to educate families and survivors about HPV effect on health, risk of second cancers, importance of receiving the HPV vaccination following cancer treatment

Results

Acknowledging the importance of protecting our survivors from covid and HPV, we launched both vaccination programs.As a result, 3 comprehensive virtual presentations and Q/A sessions by expert doctors were done, digital registration platforms were created to obtain registered data, all eligibles had their appointment schedule, with a result of 130 vaccinated survivors.

Conclusions

Because CCCL cares about the health of our heroes, we commit to using all available resources, including vaccinations, to help keep young cancer survivors safe.

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SURVIVING CHILDHOOD CANCER IN KENYA: LATE EFFECTS, STIGMATIZATION AND SOCIAL REINTEGRATION

Session Type
CCI
Date
09/30/2022
Session Time
08:30 AM - 10:10 AM
Room
Rooms 122+123
Presenter
  • Jesse P. Lemmen (Netherlands)
Lecture Time
08:50 AM - 09:05 AM

Abstract

Background and Aims

Introduction:

The number of children surviving cancer is increasing in low and middle-income countries. At Moi Teaching and Referral Hospital (MTRH), a tertiary care referral hospital in Western Kenya, childhood cancer survival rates have continuously improved over a period of 10 years. This comes with a new healthcare challenge: late effects and quality-of-life of survivors. Stigma, myths and misconceptions about cancer may play a major role in hindering social reintegration of these children.

Methods

Methods:

A single-case study was conducted to highlight challenges facing Kenyan childhood cancer survivors. Late effects, stigmatization and social reintegration were explored. Investigators identified a Hodgkin lymphoma survivor and studied his medical records. The survivor was interviewed at MTRH in December 2021 and March 2022. Two independent interviewers used a semi-structured questionnaire. The survivor rendered informed consent.

Results

Results:

This case report depicts a young Kenyan man who, after surviving Hodgkin lymphoma, still faces the long-term consequences of his previous condition. Not only chemotherapy-induced late effects (chronic heart disease), but also serious stigmatization by his community continue to affect his life on a daily basis. Cancer is regarded as an incurable, contagious curse and his family avoided. Despite the community’s stigmatization, the survivor has a strong wish to help other cancer patients going through similar challenges. He wants to teach them that the disease is not a death sentence and encourage them to speak out. He would like to help raise awareness about childhood cancer.

Conclusions

Conclusion:

This study highlights that advocacy for a holistic approach in managing the well-being of childhood cancer survivors is required: a) to map late effects, adapted follow-up guidelines must be integrated in standard care; b) to prevent stigmatization and facilitate social reintegration, myths and misconceptions about cancer need to be eradicated. This combined approach could empower survivors and improve their quality-of-life.

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OVERCOMING THE IDENTITY CRISIS IN CHILD CANCER SURVIVORS

Session Type
CCI
Date
09/30/2022
Session Time
08:30 AM - 10:10 AM
Room
Rooms 122+123
Presenter
  • Nicki C. Virgo (Indonesia)
Lecture Time
09:05 AM - 09:20 AM

Abstract

Background and Aims

Survivors of childhood cancer and coinciding with entering adolescence is a challenge that is not easy. They often experience identity crises.

The lives of teenagers are supposed to have identity and friends are hindered by some stigma in society , parents also over-protective, which make activities are limited at home. This happens to Nicki and Rama who are cancer leukemia survivors who have been cured for 10 years. Both of us have the same undergoing long treatment at the hospital and home, but when going back to school Nicki and Rama have different experiences and worries.

Rama with physical changes after treatment have no confidence because he has moonface, and bald head. His friend used to make fun of him.

Compared to Rama, Nicki as a son of a teacher is have a privilege treatment, which made his friend envy.

Both of this condition Nicki and Rama feel isolated, and unable to live a normal life.

Methods

Joining the community of child cancer survivors at YOAI (Cancer Buster Community), help see other perspectives and learn from the experiences of fellow survivors. Doing hobbies that are liked such as reading, learning a foreign language, exercising, participating actively in organizations, participating in events or events outside of school.

Results

There are positive changes in our lives, we have our self-confidence and also a sense of responsibility for the task given. We manage to communicate with others easily and also be aware of your own potential.

Conclusions

Identity crisis in child cancer survivors varies from one another depending on factor affected. Therefore, as survivors, we must look for a positive and consistent hobby. Be yourself in the positive ways. Because so many ways to Barcelona.

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WHAT WORDS DO TO US OR FOR US

Session Type
CCI
Date
09/30/2022
Session Time
08:30 AM - 10:10 AM
Room
Rooms 122+123
Presenter
  • Ana Costa Campos (Portugal)
Lecture Time
09:20 AM - 09:35 AM

Abstract

Background and Aims

By changing the words we use to define ourselves, our identity takes on a new level of meaning. Words have power, and reframing may be a way to improve the communication process, gaining new perspectives, self-esteem and confidence.

Language might act as a lens or troublemaker and promote the salience or selection of certain experiences over others. Therefore language is an efficient, powerful and flexible resource that can influence cognitive processing during mental computations (Ünal & Papafragou, 2016).

What is the relation between language and self-esteem? Language guides speakers' perspectives about the world and contributes to supporting their judging attitude.

The more you focus on some words and thoughts, the more you can damage key structures that regulate your memory, feelings, and emotions. By deliberately replacing it with words or statements that encourage confidence and self-esteem, the inner speech changes, and so does the behaviour.

Methods

During the sessions, the adolescents described themselves using up to 6 words and simulating a job interview, they had to reframe their negative and positive traits into adequate traits.

Results

My experience with adolescents and young adults that have survived childhood cancer, showed me that reframing the way they see themselves may be a powerful tool to raise their self-esteem and identity. During an important part of their development, they had to deal with the language of disease and the unknown. The uncertainty and exposure to illness may negatively influence the shaping of their identity.

Conclusions

Therefore, reframing might be a powerful way to draw attention to certain parts of the world that were neglected or encoded by the context of the disease. Reframing is also useful to increase the vocabulary and to highlight certain aspects of the survivor’s consciousness that might have been shaded by the stressors of the illness, its associated therapies, fragile peer networks, or social supports.

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Q&A

Session Type
CCI
Date
09/30/2022
Session Time
08:30 AM - 10:10 AM
Room
Rooms 122+123
Lecture Time
09:35 AM - 10:10 AM