Author Of 1 Presentation
P1101 - Information needs about bladder dysfunction in people with multiple sclerosis (ID 1955)
Abstract
Background
Eighty percent of all people with multiple sclerosis (pwMS) develop bladder dysfunction (BD) at some point throughout their disease course. The most common types of BD are detrusor hyper- or hypoactivity and sphincter detrusor dyssynergyia (SDD). BD can lead to physical (e.g. urinary tract infections) and psychological complications (social isolation). This the first part of a multi-step-project with the goal to develop an evidence-based patient information (EBPI) about BD.
Objectives
The aim of this survey is to gather information on the information needs of pwMS concerning BD. The ultimate goal of the project is the development of an evidence-based patient information on BD for pwMS.
Methods
A questionnaire was constructed assessing demographic data, urinary function via self-developed questions and the validated instrument Qualiveen (Pallek et al., 2007) as well as communication, knowledge and information needs concerning BD. The questionnaires were sent to n=297 pwMS from the MS dayclinic in Hamburg, Germany. Data was analyzed descriptively using SPSS.
Results
Of n=221 pwMS that participated in the study, 70% were female, mean age was 48.2 years (SD 10.2) and 65 % had chronic MS. Almost 90 % of pwMS had BD; of those, 30 % suffered from detrusor hyperactivity, 21.5% from hypoactivity, 5.5 % from SDD and 36 % didn’t know their type of BD. Participants were affected mildly to moderately by BD. Twenty-five percent had never visited a urologist. In a self-developed knowledge questionnaire 26 % of pwMS answered 80 % of questions correctly. Sixty-four percent of pwMS stated, BD was a taboo topic, 32 % had the desire to talk about BD. Only 48 % had ever received and the majority longed for information about BD, over 40 % were willing to take part in an educational program.
Conclusions
In this cohort with mostly people with chronic MS BD was very common and quality of life was impaired by it, but more than a third did not know what type of BD they had. Basic BD knowledge was decent, but participants still reported a strong desire for information about BD. Currently, no EBPI on BD in MS exists.
Presenter Of 1 Presentation
P1101 - Information needs about bladder dysfunction in people with multiple sclerosis (ID 1955)
Abstract
Background
Eighty percent of all people with multiple sclerosis (pwMS) develop bladder dysfunction (BD) at some point throughout their disease course. The most common types of BD are detrusor hyper- or hypoactivity and sphincter detrusor dyssynergyia (SDD). BD can lead to physical (e.g. urinary tract infections) and psychological complications (social isolation). This the first part of a multi-step-project with the goal to develop an evidence-based patient information (EBPI) about BD.
Objectives
The aim of this survey is to gather information on the information needs of pwMS concerning BD. The ultimate goal of the project is the development of an evidence-based patient information on BD for pwMS.
Methods
A questionnaire was constructed assessing demographic data, urinary function via self-developed questions and the validated instrument Qualiveen (Pallek et al., 2007) as well as communication, knowledge and information needs concerning BD. The questionnaires were sent to n=297 pwMS from the MS dayclinic in Hamburg, Germany. Data was analyzed descriptively using SPSS.
Results
Of n=221 pwMS that participated in the study, 70% were female, mean age was 48.2 years (SD 10.2) and 65 % had chronic MS. Almost 90 % of pwMS had BD; of those, 30 % suffered from detrusor hyperactivity, 21.5% from hypoactivity, 5.5 % from SDD and 36 % didn’t know their type of BD. Participants were affected mildly to moderately by BD. Twenty-five percent had never visited a urologist. In a self-developed knowledge questionnaire 26 % of pwMS answered 80 % of questions correctly. Sixty-four percent of pwMS stated, BD was a taboo topic, 32 % had the desire to talk about BD. Only 48 % had ever received and the majority longed for information about BD, over 40 % were willing to take part in an educational program.
Conclusions
In this cohort with mostly people with chronic MS BD was very common and quality of life was impaired by it, but more than a third did not know what type of BD they had. Basic BD knowledge was decent, but participants still reported a strong desire for information about BD. Currently, no EBPI on BD in MS exists.