Author Of 2 Presentations
P0819 - Perceived Social Support in Multiple Sclerosis: Impact on patient’s quality of life. (ID 1241)
Abstract
Background
Social support plays an extremely important role in treatment and evolution of patients with multiple sclerosis (MS). However, there are scarce data that describes the size and quality of social network in MS patients, as well as its impact on their quality of life.
Objectives
(a) to analyze differences in perceived social support (PSS) between MS patients and healthy controls. (b) to study the associations between PSS and clinical and health-related quality of life (HRQoL) variables in MS patients, and (c) to analyze the influence of PSS on HRQoL.
Methods
151 MS patients and 89 healthy controls (HC) were studied. HC: Age: 42.01±12.25 years; Education: 14.60±2.44 years; Patients: Age: 41.46±9.97; Education:14.05±3.26 years; EDSS:2.88±2.10; Disease evolution:12.46±10.07 years. Instruments: PSS: MOS (Medical Outcomes Study Social Support Survey); Clinical Variables: EDSS, Fatigue Scale (FSS); Depression Inventory (BDI-II); HRQoL: MusiQol. Parametric and non-parametric statistics were used, significance p value<0.05.
Results
Patients presented lower scores than HC in global score of PSS (t(238)=- 1.99, p=0.04) and in each functional dimension (t(238)=between-2.59 and -2.09, p<0.05). Associations were found between PSS with depression and fatigue (r = between-0.20 and -0.29, p <0.05) and with the different dimensions of the MusiQol (r = between-0.18 and 0.48, p <0.05). In multiple regression analysis, the four models tested contributed significantly to the explained variance of HRQoL (between 41 and 47%). The model constituted with emotional/informational support explained the greatest variation of HRQoL (47%).
Conclusions
Patients with MS perceive a decrease in their social support impacting on their quality of life. This should be considered for a better therapeutic approach.
P1012 - Coping Strategies: Seeking personalized care in Multiple Sclerosis. A patient reported measure– Coping Responses Inventory. (ID 1548)
Abstract
Background
Background: Coping is defined as a set of cognitive and behavioral efforts made to master stressful specific demands. Adaptation to chronic diseases, such as Multiple Sclerosis (MS), depends on the effectiveness of coping.
Objectives
Objective: to assess the psychometric properties of the Coping Responses Inventory (CRI-A) in the subpopulation of MS patients, to verify the transferability of the instrument, which has already been validated in the Argentine general population and to assess the analysis of external criterion validity, by studying the relationship between coping styles and physical disability, depression, fatigue and years of evolution of the disease and clinical course.
Methods
Methods: 90 MS patients were included; Outcomes measures: CRI-A Inventory, Expanded Disability Status Scale (EDSS), Beck Depression Inventory and Fatigue Severity Scale.
Results
Results: 95.56% of the patients had Relapsing-Remitting MS (RRMS), 2.22% Primary-Progressive MS (PPMS), and 2.22% Secondary-Progressive MS (SPMS). The group comprised 59 women (65.56%), with a mean age of 40.97±12.85 years and mean education of 13.46±3.93 years. The group shows a mean of 13.92±10.45 for depression, 3.77±1.72 for fatigue, 10.76±9.72 for disease evolution and 2.48±1.79 for disability. CRI-A Inventory maintains the psychometric properties of the Argentine general population in the MS subpopulation, with adequate validity and reliability. The respondents most frequently utilized a problem focused coping style. A significant positive correlation was found between the problem-focused coping style and education (r= 0.31). As regards clinical variables, significant positive correlations were found between the emotion‑focused coping style and fatigue (r=0.21) and depression (r= 0.43). Nevertheless, when studying each of the 8 coping strategies on their own, a significant positive correlation was found between 3 strategies of the emotion-focused coping style: avoidance (r=0.27), acceptance (r=0.27) and emotional discharge (r=0.42), and depression. In addition, the seeking alternative rewards strategy was linked to the disease evolution and fatigue (r= 0.24/-0.22).
Conclusions
Conclusions: The results demonstrate the transferability of the CRI-A of the general population of Argentina in the subpopulation of patients with MS. Patients with MS develop more problem-focused strategies.