Author Of 2 Presentations
P0819 - Perceived Social Support in Multiple Sclerosis: Impact on patient’s quality of life. (ID 1241)
Abstract
Background
Social support plays an extremely important role in treatment and evolution of patients with multiple sclerosis (MS). However, there are scarce data that describes the size and quality of social network in MS patients, as well as its impact on their quality of life.
Objectives
(a) to analyze differences in perceived social support (PSS) between MS patients and healthy controls. (b) to study the associations between PSS and clinical and health-related quality of life (HRQoL) variables in MS patients, and (c) to analyze the influence of PSS on HRQoL.
Methods
151 MS patients and 89 healthy controls (HC) were studied. HC: Age: 42.01±12.25 years; Education: 14.60±2.44 years; Patients: Age: 41.46±9.97; Education:14.05±3.26 years; EDSS:2.88±2.10; Disease evolution:12.46±10.07 years. Instruments: PSS: MOS (Medical Outcomes Study Social Support Survey); Clinical Variables: EDSS, Fatigue Scale (FSS); Depression Inventory (BDI-II); HRQoL: MusiQol. Parametric and non-parametric statistics were used, significance p value<0.05.
Results
Patients presented lower scores than HC in global score of PSS (t(238)=- 1.99, p=0.04) and in each functional dimension (t(238)=between-2.59 and -2.09, p<0.05). Associations were found between PSS with depression and fatigue (r = between-0.20 and -0.29, p <0.05) and with the different dimensions of the MusiQol (r = between-0.18 and 0.48, p <0.05). In multiple regression analysis, the four models tested contributed significantly to the explained variance of HRQoL (between 41 and 47%). The model constituted with emotional/informational support explained the greatest variation of HRQoL (47%).
Conclusions
Patients with MS perceive a decrease in their social support impacting on their quality of life. This should be considered for a better therapeutic approach.
P1030 - Exploring factors that impact on quality of life: coping strategies. (ID 1545)
Abstract
Background
Coping is conceived as the cognitive and behavioral efforts of a patient to adjust to disease and it may impact quality of life.
Objectives
We proposed to study the association between coping styles used by patients with Multiple Sclerosis (MS) and health-related quality of life (HRQoL).
Methods
90 MS patients (RRMS 95.56%; PPMS 2.22%; SPMS 2.22%) were included. 65.56% female; mean age: 40.97±12.85 years; education:13.46±3.93 years; Expanded Disability Status Scale (EDSS): 2.48±1.79; disease evolution 10.76±9.72. Outcomes measures: Argentine adaptation of the Inventory of coping responses CRI-A for adults; EDSS; Beck Depression Inventory; Fatigue Severity Scale and MS International Quality of Life questionnaire. Only the coping styles and the strategies that provided significant results were detailed: Problem-focused coping style, their strategies Positive Reappraisal (PR) and Seeking alternative Rewards (SR); Emotion-focused coping style and their strategy Emotional Discharge (ED).
Results
Significant correlations were found between coping styles, their strategies and HRQoL dimension. Patients with closer relationships with family (r=0.23) and friends (r=0.24), and better sentimental and sexual lives (r=0.32) obtained higher scores in problem-focused coping style, adopting an active role against the stressor. Positive and significant correlations were also found between the PR strategy and total HRQoL (r=0.21), relationship with friends (r=0.23) and sexual and sentimental life (r=.30). Furthermore, a significant positive relation was established between the SR strategy and the dimensions of activities of daily living (r= 0.25), relationships with friends (r=0.31), sentimental and sexual life (r= 0.33) and total HRQoL (r=0.28). On the other hand, patients who obtained higher scores in emotion-focused coping style reported lower HRQoL (r=-0.23), lower psychological well-being (r=-0.39) and lower scores in the dimensions of quality of life related to coping (r=-0.43) and the feeling of rejection (r=-0.23). The ED strategy was negatively correlated with total HRQoL (r=-0.29) and psychological well-being (r=-0.50).
Conclusions
The results obtained indicate that coping styles should be considered to improve the HRQoL and to study possible interventions in coping skills.