Author Of 1 Presentation
P0064 - Development of the international, multidisciplinary, patient-relevant standard outcome set for Multiple Sclerosis: the S.O.S.MS project (ID 1106)
Abstract
Background
Currently, there is no consensus on which treatment outcomes need to be measured in Multiple Sclerosis (MS) care. Consequently, it is difficult to monitor and (inter)nationally compare real-world treatment outcomes of MS care. To encourage the shift towards value-based healthcare, there is need for a standard set of outcomes for MS.
Objectives
The aim of this study was to develop an international, multidisciplinary, patient-relevant standard outcome set for MS (S.O.S.MS).
Methods
A mixed method design including a systematic literature review, four patient focus groups (n=30) and consensus-driven RAND- modified Delphi process with an international, multidisciplinary MS expert panel. The expert panel consisted of seventeen MS experts of five different disciplines from seven high-prevalent MS countries. The consensus process consisted of four online consensus meetings plus three online voting rounds.
Results
A standard outcome set for MS was defined, consisting of fourteen outcome indicators divided in three domains: disease activity (3), physical functioning (5) and quality of life (6). Patient focus groups showed that outcome indicators in the quality of life domain were most important to patients. For each outcome indicator, a measurement tool was selected and the frequency of measurement was defined. Both clinical measurement tools as well as patient reported outcome measures (PROMs) were included. In addition to the fourteen outcome indicators, seven case-mix variables were selected.
Conclusions
This international, multidisciplinary standard outcome set for MS enables (inter)national measurement and comparison of patient-relevant outcomes of MS care. Results on the standard outcome set can be used for benchmarking, quality improvement, scientific research, patient information, shared-decision making and contracting care.
Presenter Of 1 Presentation
P0064 - Development of the international, multidisciplinary, patient-relevant standard outcome set for Multiple Sclerosis: the S.O.S.MS project (ID 1106)
Abstract
Background
Currently, there is no consensus on which treatment outcomes need to be measured in Multiple Sclerosis (MS) care. Consequently, it is difficult to monitor and (inter)nationally compare real-world treatment outcomes of MS care. To encourage the shift towards value-based healthcare, there is need for a standard set of outcomes for MS.
Objectives
The aim of this study was to develop an international, multidisciplinary, patient-relevant standard outcome set for MS (S.O.S.MS).
Methods
A mixed method design including a systematic literature review, four patient focus groups (n=30) and consensus-driven RAND- modified Delphi process with an international, multidisciplinary MS expert panel. The expert panel consisted of seventeen MS experts of five different disciplines from seven high-prevalent MS countries. The consensus process consisted of four online consensus meetings plus three online voting rounds.
Results
A standard outcome set for MS was defined, consisting of fourteen outcome indicators divided in three domains: disease activity (3), physical functioning (5) and quality of life (6). Patient focus groups showed that outcome indicators in the quality of life domain were most important to patients. For each outcome indicator, a measurement tool was selected and the frequency of measurement was defined. Both clinical measurement tools as well as patient reported outcome measures (PROMs) were included. In addition to the fourteen outcome indicators, seven case-mix variables were selected.
Conclusions
This international, multidisciplinary standard outcome set for MS enables (inter)national measurement and comparison of patient-relevant outcomes of MS care. Results on the standard outcome set can be used for benchmarking, quality improvement, scientific research, patient information, shared-decision making and contracting care.